Disabled and out of pocket

Ellie Brawn, Public Policy Adviser at SCOPE, blogs about extra costs faced by disabled people and the Commission SCOPE has set up to highlight disabled peoples’ experiences, and drive down the costs.

 

Life costs more if you are disabled. From buying specialist equipment to facing higher everyday expenses, disabled people face extra costs in almost all areas of life.

 

Last week, the Public Accounts Committee reported that the new Personal Independence Payment (PIP), introduced from April 2013 to replace Disability Living Allowance, is facing major problems. As a result many disabled people are experiencing unacceptable delays in receiving these crucial extra costs payments.

 

From having to buy assistive technology, spending more on heating, buying more expensive transport, to paying more for insurance – disabled people will face around £550 in disability related expenditure. PIP is intended to help cover the extra costs that disabled people face.

 

Delays in access to the fundamental support provided by government to offset these costs puts disabled people more at risk of financial difficulty. This is especially worrying since disabled people are three times more likely than non disabled people to turn to doorstep loans.

 

Protecting extra costs payments

 

In Priced Out, Scope calls for crucial extra costs payments to be protected by a triple lock guarantee, and from the overall cap on social security spending. We set out principles for an improved PIP assessment that ensures that disabled people who need support get it when it is needed.

 

When we talk about living standards in the UK we often think of growth, wages and prices. The most recent Labour Market Statistics showed that the cost-of-living crisis may be easing – average prices did not exceed average wages for the first time since 2010. But this will not be the case for disabled people who face lower incomes, higher costs and diminishing or severely delayed support.  The issue of extra costs is one that predates the recession for disabled people, and without the right support to offset these costs, a recovering economy will not improve disabled people’s living standards.

 

But as well as making sure the support is there, where extra costs can be driven down, they should be. Some things can be very expensive for disabled people, and we want to find out why.

 

Commission on Extra Costs

 

Huge progress has been made in opening up opportunities for disabled people over recent years. Advances in technology have brought big improvements in independence and participation but all too often these come at a high, sometimes prohibitively high, cost. The inaccessibility of infrastructure and gaps in public service provision can also cause considerable extra costs for disabled people.

 

Political parties and the commercial sector have begun to recognise disabled people’s collective spending power but Scope, BT and the RCA’s Helen Hamlyn Centre for Inclusive Design  found that there are still gaps in the market between mainstream and disability-specific technology which – if tapped – have real potential to drive down disabled people’s costs and raise living standards.

 

This year, Scope, supported by the Barrow Cadbury Trust, will be launching a major Commission into the Extra Costs faced by disabled people. Over the course of a year, an independent panel of experts will consider the ways in which the extra costs faced by disabled people and families with disabled children in England and Wales can be driven down by both business and government.

 

We will be asking disabled people for their experiences of extra costs, and looking for organisations and individuals to submit formal evidence to the Commission. We also want to work with experts and practitioners across all sectors to find innovative solutions that drive down extra costs.

 

If you would like to get involved in the Commission or want to know more about it, please get in touch with Scope by emailing [email protected].

 

Ellie Brawn is a Scopes Public Policy Adviser leading on issues of poverty, welfare and financial inclusion.